Covid-19 will be a flashpoint for consumer engagement exactly as cancer was, predicts Dr Maria Teresa Dawson. And the charge will be led by consumers. Dr Dawson – who prefers to be called Tere – is Manager of Training and Development at Health Issues Centre, where she has spent the past 18 years quietly helping to transform the health system for consumers. She says although we’ve come an impressive distance with consumer engagement over the past two decades, the Covid-19 crisis has highlighted some of the gaps that still need bridging. “Cancer survivors have revolutionised the way their voice is heard [...]
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Consumers across two consultation forums hosted by Health Issues Centre provided only highly qualified support for plans by DHHS to introduce a Clinical Information Sharing system. Almost 150 consumers, consumer representatives and community organisation representatives participated in on-line forums to respond to the discussion paper published by DHHS. This paper framed an intention to commission draft legislation to amend parts of the Health Services Act and the Health Records Act, enabling public health services to freely aggregate and access health records across the health system. Based on personal examples of misdiagnosis, contradictory test results and simple transcription errors, consumers expressed doubts [...]
On Thursday 29th October 2020 Health Issues Centre (HIC) hosted its first forum, in a series of four, aimed at engaging with consumer leaders, advisers and representatives around Victoria on issues of health service reform. The first forum was on Telehealth. A full report from the event is available here.
The National Mesh Implant Forum was held in Melbourne on Friday April 5, 2019, to consider all aspects of Australia’s mesh implant crisis. The event brought together mesh injured consumers, carers, regulatory authorities, health officials, the Chair of the Senate Inquiry into mesh and consumer advocates to create solutions and bring about real change. The forum considered not only the impact of pelvic mesh and rectocele implants, but the emerging parallel crisis involving people who have received mesh implants for hernia treatment. The Forum was proudly convened by Health Issues Centre, Health Consumers NSW, Health Consumers Queensland, Health Consumers’ Council (WA), [...]
UNFINISHED BUSINESS – A NATIONAL FORUM ON THE IMPACT OF MESH IMPLANTS With the conclusion of the Senate Inquiry into transvaginal mesh and the subsequent response by the Federal Government, many people assume that the tragedy of the mesh crisis has been addressed and future injury averted. Unfortunately, whatever lessons have been learned, many thousand mesh injured women are still enduring daily pain as a consequence of their implants. Some women have been suffering for more than a decade. Many women have told their practitioners that they’ve had an adverse outcome, but doctors and surgeons have not believed them. The financial, [...]
Download media release here: Media Release TVM 290318 Thursday 29 March 2018 Media Release Vindication for mesh injured women: but suspend mesh until after audit results Australia’s state and territory based health consumer organisations have welcomed the recognition of the extent and impact of harm to women, and the recommendations contained in the report from the Senate Inquiry into transvaginal mesh implants released yesterday. But they say they hoped the report had gone further. “We are very pleased that the Senate’s recommendations reflecting our calls to strengthen provisions for informed consent, only using mesh as a last resort, requiring mandatory reporting [...]
Applications open for funded consumer engagement training and support Applications due date has been extended until COB Friday 15 November 2019. Health services wishing to increase their skills and capacity in the area of consumer and community engagement can now submit expressions of interest for free skills training and specialist support packages. These are delivered by Health Issues Centre and funded by Safer Care Victoria. Eligible health services are urged to apply now, as packages are limited. Training and professional development expert at Health Issues Centre Dr Tere Dawson said, “These packages are highly sought after in the sector and [...]
Meaningful Engagement for Social Inclusion: A Practice Guide This is a guide on how to create or improve your social inclusion work. In other words, “how can you ensure that your social inclusion work with communities is more meaningful?” It provides a compass to useful documents, resources, frameworks and tools to improve your practice, whether that is externally with individuals and communities or internally within your organisation. Read Now
There’s always a story behind how someone became a Consumer Representative and Kerri Easton is no exception. Her story is connected to her sudden career change from freelance theatrical costume maker for the Australian Ballet and Opera Australia, amongst others, to grower of Angus-cross beef cattle. “My partner had an accident and lost his balance permanently,” she said. “He was senior administrator at a university and after that I had to cart him around to doctors appointments and rehab because he had to learn to walk again. He couldn’t drive or use public transport. I had to take days off [...]